Sunday, April 3, 2016

It turns out I just don't know how to read a calendar

I thought I only had 2 weeks between my last AC and my first Taxol, but it turns out that I didn't read the calendar correctly and I do actually have 3 weeks between treatments. Oops. I guess I'm happy with a break, but in a way I just want to start the Taxol so I can be closer to being done.

I saw the oncologist on Tuesday for my follow up and we discussed the upcoming protocol for Taxol.  Apparently there's more of a chance that I'll have a reaction to it, so I have to prepare by taking steroids 12 hours and 6 hours before I get the chemo.  I have been taking 1 steroid pill a day for the 4 days following chemo.  I'll be taking the same steroid, but this time I'll take FIVE pills 12 hours before and then another FIVE pills 6 hours before.  Joy!  I am going to be climbing off the walls with that many steroids pumping through my veins.  Yikes!  She said if I respond well, we can back off on the steroids a bit, so hopefully it'll go well.  I was hoping I wouldn't have to have the neulasta patches anymore (my nurse didn't think so) but because I'm getting the "big dose" of Taxol, I'll still have to endure it.  They call it the "big dose" because the older people usually get 12 smaller doses weekly but since I'm so young (I seriously LOVE saying that LOL), I'll be getting 4 larger doses every 2 weeks.  Dr. S said that the major side effects are bone ache and neuropathy (tingling in the hands and feet), but the tiredness shouldn't be as bad.  I've heard that food loses it's taste too, but that was from others I know who've gone through this treatment.  Maybe that'll help keep my weight gain down?!

In other news, Sunny has ringworm.  We weren't 100% sure he had it (the culture hasn't come back positive, or I should say the vet's office hasn't called to let me know) but Easton has a definite patch of ringworm on his neck, so I'm going to go out on a limb and say Sunny has it too.  Oy!  I really hope no one else gets it, everyone else is all of the sudden super itchy all over and we all are worried a patch will pop up on us.  I feel like my scalp is constantly itchy, but I'm hoping it's just from the random weather change (hot one day, freezing the next- wth mother nature?!).

I'm feeling pretty good lately, although I'm SO tired all the time.  I have decent days and then not so great days.  I think my body is just so worn down from all the poison.  I had another pretty bad bout of insomnia on Wed night/Thurs morning, which seems to be my insomnia night for some odd reason.  I wasn't able to fall asleep until 4:30am.  On the bright side, I did find a new show to watch on demand- Hollywood Medium LOL

On a random side note, I almost puked when I saw this at BJ's the other day.  I'm pretty sure because of the Adriamycin, which my nurse called "red koolaid" but is better known on the internets as "red devil", I'll never be able to drink anything red ever again.  I'm not saying that's necessarily a bad thing, but this koolaid literally looks just like the crap Nikki pushed into my veins:

I think I'm going to see a lot of things differently after this journey is over!  

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